My child's physician/surgeon feels my child will "outgrow" their condition. Do I really need a second opinion? add a new question?

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If you are searching the Internet for additional options, chances are you are not comfortable with your child's condition. Seeking a second opinion never hurts. It will either confirm what your physician/surgeon has told you, or it will open up additional treatment options to consider. question go to app settings and press "Manage Questions" button.

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How do I schedule an appointment with Boston Children's Hospital?

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To schedule an appointment, call the Esophageal and Airway Treatment Center at 617-355-3038.

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What is Boston Children's Hospital like?

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Boston Children’s Hospital is located in the heart of Boston, Massachusetts and is top rated. The hospital only treats children, and is geared towards families. Inside the hospital, you will find games, activities, and playrooms for children. The hospital uses bright colors and symbols to guide patients to the office or floor they need to visit. A large food court is located on the first floor and includes several dining options. Several resources are available for families who may need assistance and international families. For more information, visit http://www.childrenshospital.org/patient-resources/family-resources

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What will our first appointment be like?

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Your first set of appointments will be tailored to your child's medical history, symptoms and concerns. The Esophageal and Airway Treatment Center will try to coordinate all necessary appointments into a 2-3 day window, to accomodate families coming from out of town.

It is important to bring the following to your appointments:
1) Insurance information

2) List of medications and medical procedures

3) List of questions you have

4) A second person (if you can!) This will allow one person to care for the child and one to

more actively talk and listen.

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What is a Tracheopexy?

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Tracheopexy is a surgical procedure that opens up and supports the airway by suspending the back of the tracheal wall from the back of the sternum. An incision is made in the patient’s back near the armpit. The procedure will last between 6-8 hours. Once out of surgery the patient will be transferred to the Intensive Care Unit, or ICU for monitoring. Once the patient is ready (usually 1-2 days post op), the patient will be moved to the surgical floor for the rest of their stay (2-10 days). Once discharged, the patient can return to activity as they feel comfortable. There is no immediate follow up, unless complications or questions arise.

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What is an Aortopexy?

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Aortopexy is a surgical procedure that provides immediate and permanent relief of severe tracheomalacia by opening up the trachea by moving up the aorta (the body's main blood vessel) and attaching it to the back of the breastbone (sternum). An incision is made in the patient’s chest, usually, horizontally. The procedure will last between 6-8 hours. Once out of surgery the patient will be transferred to the Intensive Care Unit, or ICU for monitoring. Once the patient is ready (usually 1-2 days post op), the patient will be moved to the surgical floor for the rest of their stay (2-10 days). Once discharged, the patient can return to activity as they feel comfortable. There is no immediate follow up, unless complications or questions arise.

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Can I stay with my child?

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This is a very common and important question. The answer is yes!

Pre-op – You may stay with your child until they are taken into surgery. Some children go freely with the medical staff, while others may be apprehensive. If appropriate, you may “gown up” and walk/carry your child into the operating room. Once they are somewhat sedated, you will then leave.

Post-op – Your child is monitored in post op until they are ready to be transferred to the Intensive Care Unit (ICU). Generally, this will take between 1-2 hours, depending on the patient and bed availability in the ICU. Once transferred to the ICU, you will be notified and be taken to the ICU waiting room. Once your child is accessed and checked in with the ICU staff, you will be brought to their room. Again, this can take some time, depending on the child and the needs of the ICU.

Intensive Care Unit – You may stay with your child in the ICU, including overnight.

Surgical Floor – You may stay with your child once they are transferred to the surgical floor. Beds and pull out furniture are available. Your child may have their own room with bathroom, or may share a room and bathroom, depending on the needs of the hospital.

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What is recovery like? When can my child resume normal activities?

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Recovery will depend on the prexisting health and medical condition of the child. Most children will recover 4-14 days after tracheopexy and/or aortopexy. Each child will respond differently. Patients can resume activity when they feel ready, It is important to keep the surgical site clean, and dry. It is important to look for signs of post operative infection such as increased pain, swelling, fever, redness and drainage from the site. If you have any questions, contact the patient's surgical team.

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Público

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Gestantes e pais de bebês recém-nascidos até 24 meses de idade.

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Duração do curso

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O curso é dividido em pequenos módulos com duração total de 4 horas.

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Disponibilidade do curso

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O curso é seu, você terá acesso a ele por tempo ilimitado e poderá conferir e rever as informações e vídeos sempre que precisar.

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Como terei acesso ao conteúdo do curso?

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O acesso ao curso e aos bônus ficará disponível através de um link que será enviado por e-mail em 24 horas após a compra. O e-mail será a sua via de acesso ao curso, por isso o salve com cuidado! ​

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Por que o curso é realizado online?

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Em nosso programa de consultoria, atendemos famílias do mundo todo, e a plataforma online foi um meio que encontramos para disponibilizar o nosso conteúdo sem restrição de local e, além disso, se programando para assistir com atenção no horário em que tiver disponibilidade. ​

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O curso me dá direito a um atendimento individual?

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Não. Para ter acesso a Consultoria Infantil, que envolve um atendimento especializado e direcionado, é preciso entrar em contato e contratar esse serviço. No entanto, participando do curso online pelo pacote 2 você terá direito a uma consulta com a Amanda, via Skype ou Whatsapp, em horário a combinar!

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Posso compartilhar o bônus de maneira avulsa?

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Não. Como o nome já diz, são bônus, ou seja, um prêmio concedido apenas aos compradores do produto!

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Me inscrevi e estou acompanhando os estágios, mas estou com dúvidas. Como faço para retirá-las?

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No mês seguinte a contratação do curso, será realizada em nosso canal do YouTube, através de um vídeo exclusivo ao vivo (com duração de 1 hora) para nossas clientes, um encontro permitindo interação das famílias que realizaram o programa, para retirada de dúvidas e compartilhamento de experiências. Dessa forma, você terá tempo para assistir o curso com tranquilidade e separar todas as suas dúvidas!

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Irei receber material didático?

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Sim! Mas vale lembrar que você não receberá nada em sua residência. Tudo é online! Se você gosta de materiais impressos, não tem problema. Você pode imprimir os conteúdos que acompanham os módulos e os bônus. ​

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Quais serão as formas de pagamento?

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O pagamento será feito por meio da plataforma Hotmart que está vinculada ao PagSeguro, por isso você poderá escolher a forma de pagamento e parcelamento mais adequada.

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